The Rocky Road
I was cruising right along
when this rocky path appeared
and now I have been walking it
for many trying years
and yet it leads me onward
there’ve been obstacles, I fear
but despite the looming shadows
I have no time for tears
each day I have, I celebrate
this precious gift I’m given
and I for one have vowed to make
each one a day worth living
so moment by moment, mindfully
I take a step most carefully
along this steep and rocky road
trying not to stumble
I strive to end each day
with hope in a new tomorrow
my heart assured, my spirit free
safe within the circle
of my friends and family,
I choose to dwell on happiness
and not waste time on sorrow.
One day I am living my life, happy in my home, surrounded by friends and family and the next day I receive a diagnosis that changes my picture perfect life forever. Life can be like that, and we must learn to roll with the punches.
I had noticed changes in my body a few years before diagnosis, but caught in a difficult passage through menopause, I attributed some of it – the anxiety especially, to that. And then, in 2007, a routine colonoscopy found a polyp that we did not know was cancer until after surgery. The anesthesiologist I had for that procedure suggested I see a neurologist for the tremor I was experiencing. I followed through once I had recovered from the colon cancer operation, already certain of the answer –Parkinson ’s disease.
And now, 6 years later, I am still living my life, happy in my home, surrounded by friends and family, but living a life quite different from what I had expected. Now I must take 3 prescription drugs, 2 of them 3 times a day to facilitate walking, control the tremor, and slow down the progression of the disease. 3 additional medications address my blood pressure, anxiety and thyroid. For dessert I have folic acid, a multi-vitamin, vitamin D, 4 fish oil capsules, and a full size aspirin to complete my daily feast of meds. Then there is exercise. I have a small, powered stationary bike that I use every day, keeping the rotations above 80/per minute, aerobic walking using the Leslie Sansone Walk at Home programs on DVD, followed by yoga for flexibility or tai chi for balance. I also lift weights three times a week for strength training. It takes a big chunk out of my day but it beats the alternative. I complete my regime with a relaxing meditation
Fortunately, I am 5+ years out from the cancer surgery and so far so good. I have had a total of 7 colonoscopies to monitor things and I see an oncologist twice a year and take an aspirin daily. So far my regime has been successful in keeping me moving and slowing down the PD. This summer we took a cruise to the British Isles and I walked every day. We did an “On the Deck 5K Walk for the Cure” around the ship. So although I’ve had to make major changes (retiring and giving up driving). I have adjusted to life along this Rocky Road. I take each day as it comes and try to treat it as the gift it is. I allow myself time to continue to grow and learn new things through online classes, visits to museums, and writing poetry, my memoir and currently, a middle grade children’s novel. Spending time with family and friends is paramount in keeping up the spirits and continuing to participate in life.
My mother endured months of bedrest to avoid miscarrying me, so that I am here at all is a wonder; that I’ve lived 60 years and have had a marvelous life filled with love and support from my family and friends, and have been married for 37 years to my soul mate and best friend my husband, Bill, is simply miraculous.
Since I can’t know whether the road remains rocky the rest of the way, or smooths out for me for a time, I continue to walk along it (as best I can) try to keep healthy and fit to write and celebrate the gifts each new day brings.